A 39-year-old father of two has recorded 400 sentences so that his daughters remember his voice when he loses the power of speech to the degenerative disease
“I could sit there and get frustrated at the fact it is stopping me doing stuff but then I’m going to get frustrated about all of it. I make the most of what I can do.”
According to the NHS, motor neurone disease is a rare condition that affects around two in every 100,000 people in the UK each year. There are about 5,000 people living with the condition in the UK at any one time.